Jun 28, 2015

Daniels Gradutaion Party

After the graduation ceremony we had several friends over for dinner and to hang out.  We had kids here until close to 11 which isn't really late unless you're me and fighting a migraine and exhaustion!

Daniel at the sound board


David speaking
Me speaking
Presenting the diploma

Daniel ran his own sound
 


Some of his friends before we went to our house

Video games are always a part of the day

We had kids in every room except ours

Balloons added to the festivities

.
This is our gardenia bush.  Very fragrant.  Daniel is showing its size


some of the kids jumped rope
 
We had ages 4 - 54





Sarah hula-hooping while walking on the spool.  Hard to do and hard to photograph.

Daniel taking his turn.

 

Congratulations!! Daniel 2015 Graduate

Friday, June 19, 2015 our 1st and oldest child graduated from high school.  It has at times been a rocky road, but we ALL persevered and he did it.  He actually finished several days early and at times he felt like it would never happen.

We invited friends and family to join us for a short but meaningful ceremony.   Daniel chose songs that were meaningful to him, Dead Man, and pertinent, Schools Out.  The poem "If" has long been a favorite of Davids and one we as a family have heard and discussed many times.



Beginning of Wisdom Homeschool

Class of 2015

Friday, June 19, 2015

3 o'clock p.m.

Daniel Weldon Gibson


Prelude                                                             Dead Man by Wolves at the Gate

Invocation                                                        Evelyn Bickley, Gavel Club Instructor

If by Rudyard Kipling                                    David Gibson

Letter to Daniel                                               Susan Gibson

Letter to Daniel                                               David Gibson

Presentation of Diploma                               David & Susan Gibson

Benediction                                                     David Gibson
Postlude                                                           Schools Out by Alice Cooper

                                                                                  Dead Man

by Wolves at the Gate


I was once a dead man A stranger with no home
I stood opposed to God himself And yet He pardoned me


With all my heart and the fiercest will Desired not but to thieve and kill
I hadn't a thought of peace, but war Surrender was not what I'd endure


I was a murderer filled with lies and deceit Faced with my list of crimes that I would always repeat

Deliver me! Wake me up from this damning sleep

I'm surrendering! Pull me out from this wickedness In this thieving heart of stone

I realized all these sins I could not atone


I was a murderer filled with lies and deceit
Faced with my list of crimes that I would always repeat


I was once a dead man A stranger with no home
I stood opposed to God himself And yet He pardoned me


So just at the right time when we were dead in our sins

You took this heart of mine and gave me life again

You gave me life again This is where I begin


So far apart and a debt to fulfill This purchase bought on redemption's hill
An ailing disease I couldn't cure Oh this grace! How rich and pure!


Abide in me, my God! I am found in You Pardon me, my God! You know my deepest thoughts
Deliver me from sin! I am made anew
I'm surrendering this heart! For which your blood it bought


The mob they yelled and screamed for justice That wrath was ours we are to blame
You made a spectacle of rulers Denying You of a king's fame
Having crushed the written cannon That wrote of all our guilt and shame
Displayed upon the tree it was nailed The saving power of Your name


For I was once a dead man
A stranger with no home
You saw this wretch
And You gave him life
Forever I'll praise You!
I will praise You!



    IF
by Rudyard Kipling


IF you can keep your head when all about you
Are losing theirs and blaming it on you,
If you can trust yourself when all men doubt you,
But make allowance for their doubting too;
If you can wait and not be tired by waiting,
Or being lied about, don't deal in lies,
Or being hated, don't give way to hating,
And yet don't look too good, nor talk too wise:

If you can dream - and not make dreams your master;
If you can think - and not make thoughts your aim;
If you can meet with Triumph and Disaster
And treat those two impostors just the same;
If you can bear to hear the truth you've spoken
Twisted by knaves to make a trap for fools,
Or watch the things you gave your life to, broken,
And stoop and build 'em up with worn-out tools:

If you can make one heap of all your winnings
And risk it on one turn of pitch-and-toss,
And lose, and start again at your beginnings
And never breathe a word about your loss;
If you can force your heart and nerve and sinew
To serve your turn long after they are gone,
And so hold on when there is nothing in you
Except the Will which says to them: 'Hold on!'

If you can talk with crowds and keep your virtue,
' Or walk with Kings - nor lose the common touch,
if neither foes nor loving friends can hurt you,
If all men count with you, but none too much;
If you can fill the unforgiving minute
With sixty seconds' worth of distance run,
Yours is the Earth and everything that's in it,
And - which is more - you'll be a Man, my son!


Jun 17, 2015

Day 19 of Migraine

Today is day 19 of a level 8+ migraine.  I saw my doctor last Thursday and she gave me a shot of Demerol and Phenergan and a prescription of codeine and Phenergan.

 On Friday I called her back and she gave me a prescription for Percocet and a new nausea med.
Nothing is giving much relief.

 It is so hot here, in the high 90's with no relief in sight. 

I'm so tired of the pain.

My son's graduation party is this Friday and this is not something that can be changed. 
Please pray that I will get relief from this migraine


Jun 8, 2015

Brief Update

Right now it feels like everything is very negative and discouraging.

Nothing on a job for David.

Denied Medicaid because it took too long to get them the info so I have to start over.

Constant, level 8+ migraine for the last 11 days.

Daniel and David fighting.

Daniel thinking that since he is 18 he shouldn't have to have any rules.

Stressing over the financial situation.
 
Getting my pinched nerve in my neck fully healed.

On a more positive note, Sarah and I visited my parents church yesterday and the youth pastor preached a very good sermon about keeping the gospel of Chr1sts crucifixion and resurrection at the forefront of our f@ith.  Mom is going to get me a cd of the sermon. He was preaching to the graduates but it was a message we all needed to hear.

Thank you all for your prayers and support.  It means so much to me,

May 18, 2015

Sarah's 17th Birthday

Sarah loves rock climbing and bouldering.  Unfortunately, Inner Peaks is the only indoor facility that we now of and they are 35-45 minutes away.  But it has become a birthday tradition for of to some extent.  So yesterday we took her along with Daniel and Steven, a friend from Gavel Club an Engineering this year.  Sarah had a free climbing and gear since it was her bday and the boys paid their own way so it was really inexpensive in the long run.  All we did was drive them and feed them.

17 years ago, on a Sunday much like yesterday, a little after the morning church services were over, Sarah Katherine Gibson made her debut.    She has been such a joy to raise.  Yes we have had our difficulties like all parents do but all in all we have been so blessed to have the privilege of raising her. 

Happy Birthday Sarah!

Here are some photos of the day.


 At Lunch

Daniel

Steven & Daniel





Steven & Sarah


Daniel at lunch

Steven at lunch



May 12, 2015

No real improvement with pinched nerve

Visit to the Dr yesterday was not encouraging. He said when I fell out of bed 12 days ago it really set me back.  I go back on Thursday and if things aren't better I'm probably headed next to a neurosurgeon.  Please continue to pray.  I'm in constant pain and getting very discouraged.





May 1, 2015

If it's not one thing it's another

Last night I fell out of bed and hit my head, jaw, right arm and reinjured my pinched nerve which had been on the mend.  The look on Dr Halls face when I told him what had happened was not good.  This may be a major setback  and he told David to watch for signs of a concussion.

This is going on 6 weeks that I can't do much of anything.  I can't drive, cook, crochet, or even fold laundry.  I'm starting to loose hope in ever getting better.   I'm seeing my family doc on Monday about the discoloration on my face.  Today it does appear lighter and the bruising around my eyes is less and my right eye is not as droopy as it has been.   There is so much going on that it's becoming very hard to have any positive outlook or thoughts.

No job in sight for David but Dole did ask him to apply for a job. 

Please continue to keep us in your pr@yers,

Susan



Scrambled eggs with asparagus, grape tomatoes, bacon & sweet onion.  YUM...ME

Apr 30, 2015

The Face of Migraine Disease

 
 
 I use the following on my face in this order: Trader Joes moisturizer with spf, e.l.f. tone adjusting face primer (green), Loreal BB cream in fair, physicians formula loose mineral powder, rimmel lipstick as both blush and lipstick. I wash with witch hazel. If I feel I need more coverage I add Loreal magic nude liquid foundation AFTER the BB cream

Update on my pinched nerve

Update on my pinched nerve in my neck.  I saw Dr Hall and he said that at this point I'm avoiding surgery by a hair.  So I still have to take it very easy and he told my to stop eating all wheat, corn, and anything with high fructose corn syrup.   This in addition to reading labels for al my migraine triggers.  BUT the easiest way to do this is to only eat fresh foods.  I don't eat a lot of premade to begin with but I do use commercial salad dressings and I love almost all forms of pickled veggies.


Daniel in the white shirt, back to the camera, taking Krav Maga

Sarah holding Granddaddy's cat April.  April LOVES Sarah.

Apr 27, 2015

The Face of Chronic Migraine Disease

This what migraine disease has done to my face. So thankful for makeup that does a pretty good job of masking it without feeling like I've spackled my face.  Tomorrow I will try to remember to post photos with makeup on and the products I use.
 



 

Apr 20, 2015

Will YOU share and help?

Ok Folks. What is UP? Samantha's fund raiser has been shared 245 times yet only 9 people have helped.
Is this event not "flashy" enough? Is It not dramatic enough?
How's this for drama? Samantha sleeping in a bed like each of us do at night, causes her to run fever a lot of the time. Remember the lovely and short lived NC snow storms we have? It is dangerous for Sam to bundle up and go outside to sled with her friends because her body can't self regulate and her temp... will drop extremely fast and she can go into hypothermia.
There is much more that I could tell you but will save for another post.

This family are personal friends of ours. I do NOT share fund raisers that I feel are frivolous. Donations to Samantha will mean she can continue to get the medicine, equipment, therapies etc that she needs to live.
I was overwhelmed with the support my friends showed us and continue to show us.
If you want to give and remain anonymous then contact me and I will give you the address to mail a money order.
Please share
Please pray
Please Give!
 

Apr 4, 2015

Favorites

Post-It notes are one of my favorite inventions.  They are so versatile.  I use them in sewing, crocheting, reading, planning, remembering, listing, and on it goes.

I do NOT think however I would use them in home decorating.

decorating? Umm, NO!


Apr 3, 2015

This is Samantha, Would you share and help?



This is Samantha.



 An 18 year old dancer, musician, artist, lover of animals, & anti bullying advocate.  In many ways she is your typical teen.  She likes hanging out with friends, painting her nails, shopping...In many other ways she is not.  The following was written by Sam's mom and my dear friend Jodie.

Sam was born with  static encephalopathy and a unique,  extremely rare chromosome disorder. Because it is so rare there have been no studies done on it and no name for it. The Genetic Drs are calling it "Xq25-Xq26.3 chromosome duplication disorder" because that is the link of her duplication.

 Due to this genetic disorder she has many other health issues and is really small. For example her foot is a size 2 kids, its as long as my hand and her hands are small as a toddlers. 


 She has Secondary Mitochondria, cerebral palsy, oral motor apraxia, asthma, gerd, Bile gastrisis, learning disabilities, sleep apnea, autonomic issues, Thermal dysregulation, and other health issues.

 As a baby she grew really slowly and had a diagnosis of failure to thrive, and was delayed in all of her physical abilites. She had many doctors, testing, and thearpies. As time went on we adjusted and she learned things, even if that process was and is slower than others.

   Now she is a beautiful 18yr old, kind and caring teenager. Biologically she is 18, but because of the delays and static encephalopathy she is more like a 12 yr old. Within this last year she has had new medical issues emerging. The doctors believe these issues stem from the Genetic abnormalites. We just have to try and deal with stuff as it appears. 

     We just took a trip to Wisconsin Childrens hospital to see speacilists, which was an out of state trip for us. They put her on many Mitochondrial supplements, like Coq10.

 She was also diagnosed with Thermal dysregulation. She doesn't sweat and her body does not regulate her temp. very well. She has to be extra careful of the heat and the cold. So she doesnt get heat stroke, or hyperthermia. Just taking a nap under covers, causes her to run a fever. We need to order her a cooling vest and a cooling blanket which aqre expensive.

     She has episodes where she loses time and what is going on around her, leaving her confused and unsure what just happened. The neuro-surgeon we saw and her local neurologist believe she may be having seizures that are deep enough in the center of the brain that they aren't showing up on the EEG tests. So they are sending us to another specialist at Duke University. They said they may do a special MRI or a PET scan. The large gaps of missing time really concern us and her doctors. So we are trying to get to the bottom of this issue.

      She also having a lot of trouble with her stomach, eating, and digestion. She has more tests coming up for this. Depending on these tests, and if she continues to lose weight, they are talking about a G-tube (feeding tube) in the future. They have her on nutritional drinks "neocate splash" to hopefully help her maintain her weight, and a high calorie diet. She been dealing with vertigo, migraines, nausea, abdominal pain, body pain also.

    Because of her static encephalopathy and learning disabilities, Samantha is delayed and has to attend some thearpies and counseling. Pyscologically there is a lot to deal with. Any help we can get her to make things better for her to deal with daily life issues and situations would be great. We just want her to be as happy and healthy as she can be. To live the best she can later in life as a productive member in our society.

     This is the best I can do to sum up the issues without going on for many more pages. A child with disabilites needs many services and it can be overwelming finacially, no matter how much you do to keep up with it. Her mitochondrial supplements alone are extremely expensive and not covered by insurances. Not to mention, copays, hosptial bills, etc. I thank you so much for taking the time to read some of her story. If you can donate to our fund to help Samantha get the continuing care that she needs we thank you sooooo much. Sharing the link to this page, so others can see it is also a great help. Thank you


Please share. I know there are many, many needs to fill. I certainly cannot meet them all. But GOD can! Quite often He uses us to bless someone.
As you pause this weekend to reflect on our Saviors perfect sacrifice, would you consider sharing this post and making a donation to help Samantha and her parents pay for her very expensive medicine and medical treatments?

Samantha Medical Expense Fund Raiser

Mar 1, 2015

In an effort to bring in more $$....

to help pay the bills and keep us fed I have created a fund raising site.   I am also going through the house and pulling everything I can to sell on eBay and various Facebook groups.



I have a couple of friends saving metal cans, soda & veggie etc.,  for us to turn in for cash.  Its not a big amount but every little bit helps.

The thing about being in a situation like this, for any family not just us, is that from Thanksgiving through Christmas folks think more about donating to those in need.  Then when January comes the help stops.  That's what happened to us.  And we stretched those gift cards and $$ as far as we could but now we're out of funds and need help again. 

Do NOT misunderstand what I'm saying.  We are so grateful for everything our friends and family have done for us.  When David's battery died a couple of weeks ago, in the Wal-Mart parking lot, we had enough on a gift card to buy a new battery for only $7 or so. 

So far the mortgage has been paid as well as the gas, water, electricity, internet & phone.   We have the least expensive internet we can have and we have to keep it for job searches and applications as well as for homeschooling.
 
The kids have been so generous with their savings and Daniel is working now so he has bought gas for the cars and even his prescription this past Friday.  And Sarah has bought her supplies for Science Olympiad competition.

So please keep us in your prayers.

1.  That we will trust our Father in Heaven
2.  That David will be encouraged in the face of this trial and disappointment
3.  That I will be wise as Solomon in handling our finances
4.  That the kids will not be overly stressed about the situation
5.  That my constant migraines will cease or at least lessen.